A chronic disease like Juvenile Arthritis (JIA) is challenging – for the parents, but especially for the children.
JIA mostly affects very young children and for them it can be especially difficult to understand the implications of the disease as well as the medications, diagnostic procedures, and ongoing medical care that are necessary to achieve good outcomes. In order to find ways to explain the disease and the associated medical management to these children, Inga Bohnekamp, a child psychologist, and Dr. Johannes Roth, Pediatric Rheumatologist, have written a children’s book called “Colours of my Rainbow” which explains the disease, procedures, but also relaxation techniques and other measures that can be applied at home on a day-to-day basis to deal with symptoms of the disease. To date, no such resource is available that addresses young children directly.
The “old-fashioned” medium of a children’s book was chosen deliberately to allow parents to read this book with and to the child thereby starting a process of understanding the disease and coping with it together.